Lymphedema is difficult to deal with, and it’s even harder if you feel alone while you are dealing with it. This blog post is designed to help you feel less alone and provide good quality resources to help you cope. Here is a sample of some great lymphedema resources [ex-toc].
Lymphedema Organizations
There are many great lymphedema organizations that are doing great work to advocate, and support those with lymphedema.
National Lymphedema Network (NLN)
Located in New York, the NLN provides advocacy they provide education, position papers and provide a directory of lymphedema therapists.
Lymphatic Education & Research Network (LE&RN)
As the name indicates they provide education, and advocacy. There spokesperson is Kathy Bates, award-winning actor, breast cancer survivor and currently living with lymphedema. They have lots of resources on their website as well as links to lymphedema certification schools.
Brylan’s Feat Foundation and Camp Watchme
These are two great organizations for kids with lymphedema.
This is Canada’s national lymphedema organization and they produce an excellent magazine called Pathways. In order to receive your copy of Pathways magazine, you join one of the provincial organizations.
The British Lymphology Society provides resources for professionals and consumers affected by lymphoedema and and lipoedema and related lymphatic disorders.
Australasian Lymphology Association
The ALA serves professionals and individuals with lymphedema in Australia, New Zealand and the neighbouring islands in the south pacific.
Canadian Provincial Organizations
Since my blog is based in Canada, I’m sharing some of the active provincial lymphedema associations.
Lymphedema Association of Newfoundland and Labrador
Lymphedema Association of Nova Scotia
Lymphedema Association of Ontario
Lymphedema Association of Quebec
Lymphedema Association of Manitoba
Lymphedema Association of Saskatchewan
Lymphedema Association of Alberta
International Lymphedema Organizations
International Lymphedema Framework
This international organization headquartered in Denmark hosts conferences, and produce a journal called Lymphatic Research and Biology.
Training Schools
Visiting the training school websites can help you to locate a certified lymphedema therapist in your area.
Dr. Vodder School International
International Lymphedema and Wound Training Institute
LymphEd (The US branch of the Casley-Smith International program)
Norton School of Lymphatic Therapy
Lymphology Association of North America
The Lymphology Association of North America, LANA, is a non-profit corporation specializing in the certification of healthcare professionals who diagnose and/or treat lymphedema and related disorders.
Lymphedema Books
In my opinion, the best book on lymphedema is The Complete Lymphedema Management and Nutrition Guide. But, I’m biased, since I am one of the co-authors. But, I’ve received great feedback from readers and I know that my co-author and I went to great lengths to provided evidence-informed balanced information for our readers.
Lymphedema Journals
Tracking your lymphedema, your self care and your nutrition, will help you to manage the many aspects lymphedema management. These journals were made especially for people with lymphedema.
Podcasts and Video
There are a couple of podcasts on lymphedema and if you like to learn by listening, then you should check these out.
Lymphedema Podcast by Betty Westbrook
If you search your podcasting app, you will also see lots of single episodes of other podcasts that cover the topic of lymphedema.
Dr. Shari is a force of nature and has an amazing spirit that she shines on her advocacy and support for lymphedema. As a cancer survivor and lymphedema patient herself, she speaks as both a physician and patient.
Lymphatic Yoga with Barbara Jackson
Barbara’s mother was diagnosed with lymphedema after cancer treatment and she focused her training as an occupational therapist and yoga instructor to help her mom and others with lymphedema. Her videos are classes are very popular and I’ve seen how helpful they can be for people with lymphedema.
Nutrition Classes
Lymphedema Nutrition School is not just an on-line class, it’s a learning community. Full disclosure…this is my program! So, of course, I’m pretty proud and eager to share the great results of seen. But, I’ll let me students speak for themselves…you can read their testimonials when you click on the porgram from my schools home page.
Lymphedema Blogs
I hope you find some support for living with lymphedema. Here are some other blogs to help you manage your lymphedema:
If you want to know about which products you can use for your lymphedema, then check out this blog Products for Lymphedema.
